Late update

I know its been months since I've posted on this blog. Glory's new diagnosis had us very busy with doctor appointments .. it seems we have been living at the doctors. If not for Glory for the fosters, as we also found some health issues with Romeo. Although it seems that way.. its nice to look back and collect photos for this blog because it reminds me of all the fun that happened between the stress.  To start … doctors and meds ..  meds and doctors.  Pans has been a rough journey for Glory but it seems she is in a good spot at the moment.  Her ability to use her legs consistently has returned. She can now again walk down stairs and doesn't need a wheel chair or to stop activities because her legs 'are giving out' as she puts it.  Thankful to her immunologist and the chiropractor.

 Do most kids look like this at the doctor?! What a kid she is.

 loves the waiting room fish

 a lot of meds for a little kid...and this isn't even all the vitamins 

(thank goodness we taught her to swallow pills using a game with mike n ikes)

 the long ride to new brunswick in crazy traffic to st peters hospital is especially tough for her

 but she does enjoy the waiting room video games

Through it all she is such a champ !

Beyond all the doctors … the rest of our life has been full of the following these past few months:

Helping our foster kitties

 learning to prepare and give meds

 Spreading their pictures around town

 waiting in the rain for their free clinic rabies shots

 bringing them to adoption events (they don't like that part)

They havn't been adopted yet but we do have someone interested who we spoke on the phone with a couple days ago *good luck adoption vibes for Romeo and Juliet*

Karate

Glory graduated from special needs Karate and got a medal ! 

Halloween fun

Working on those worries

Day out at the natural sciences museum with daddy

Dolphin Cruise! and A/C aquarium
first time on a boat!

 We saw so so so so many dolphins .. i'll try to upload video later

Barton Xmas set up

First time fishing !

New Art class (2 Thursdays a month)

Book Reader
(due to Glory's condition and brain injury causing dyslexia
and other reading problems she was set up with a special
book reader for kids with disabilities)

Dragon love and book love
(when your homeschooled kid loves everything dragons and finds
dragon books she falls in love with... you buy them of course..
even if you will have to be the one reading them all to her)

Our August

 George got adopted !!!  we miss him <3

 Pool is closed now, we miss it too!

 We enjoyed some birthday fun at the diner 

 Gillians Pier with Jason ! 

 Always an artist .. draws all the time ...and everywhere 

 We had a great summer … and lots of avocado mint choc chip icecream

We have been enjoying all the New Day Family success center activities! 

 Its been so hot this summer, we spent a lot of time playing inside

 We started fostering a pair of kittens <3

 Diner for dinner and the discovery museum with Jason !

 little chef

 Glory has been diagnosed with PANS. Autoimmune Encephalitis.  Treatment is antibiotics and anti inflamatories. Well we noticed that on the right meds she has been less anxious and started falling asleep and requesting to stay sleeping on the couch which is the first time she has slept in a room apart from us in 8 years !!  We took this as a sign to set her bedroom up as her own room and she is now sleeping in her own bed in her own room for the first time in 8 years !  She also lost her Autism diagnosis. It was all brain inflammation.  We have a lot of recovery to do but at least she is on the right road to recovery now with doctors who know what they are doing.

 Fun with cinnamon <3

 She started a new thing and kept chewing on her hands … so we got her a chewy shark, she loves it.

 Story book land with daddy ! 

 can we say growth spurt!!!??

 RIP Sassafrass 

 she has taken to sewing a lot lately !!

 Romeo was the shy one but he is starting to follow Glory around too now 

 Loving her own room!  

 starting to feel like fall outside

 math helper - one of Glory's new symptoms is dyslexia .. the doctors feel it should correct itself on the right meds for the right amount of time

 Forest friends is back at bass river state park !! 

 Pancakes at New day

 Glory has been having fun playing computer games with daddy..

she is getting really good at cat goes fishing

 Completed Life of Fred - edgewood !

 5 books down, 5 books left in the elemental series

 Won a playdoh set at bingo from new day !! 

 She has fun with her little friend Bernnel and had fun sewing him a birthday gift

 Glory's new shoulder shrugging tic has placed her in a chiro's care ..

 thankfully he is helping with the pain

 Wetlands Science class is back ! 

 The immunologist ordered more bloodwork to get an immune system baseline and help figure out why our little girl has an autoimmune disease. As is our tradition she gets to pick 'any toy!' after she completes her bloodwork.  She did the best so far this time although she did puke up all the water she drank when she was done.  But all was forgotten once she picked out her new lego set.  We are anxiously awaiting the bloodwork results.  Thankfully on the new meds … Azithromax, large doses of advil, and nasal sprays Glory's tics have again become a thing of the past.  Hoping they stay that way.